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Thank you all for the well wishes. I have was diagnosed by a neurologist with Meige's Syndrome, Cervical Dystonia and Spasmodic Dymphonia. And, yes, I took the advice given here and had the biggest longest cry I've had in years.
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Well, it's been quite a week. My step-son is stable but still in an induced coma. It may be some weeks before they can bring him out of it. As if that wasn't enough I have developed sudden onset Dystonia and am praying I do not find myself completely disabled at some point as it is progressing rapidly for the worse. I had never even heard of Dystonia before Tuesday in the ER. Talk about having your life turned upside down. I am trying to stay positive for my family and my chidlren and that's actually why I came here to write abut how I'm doing because I can't really express my true fear anywhere else. i have to be strong for everyone but the truth is that I'm scared out of my mind. This dystonia may be temporary due to stress/ trauma. You need to be allow yourself to be human and for goodness sake dont hold your emotions in to be strong. Your body tells you when you are not ok. Scream, cry, do what you have to to unleash the hurt, frustration. I am speaking from experience. My first husband was in a car accident with head trauma, induced coma, on life support. Shall continue praying for you ..... You are speaking from experience about Dystonia? When did you have it? Are you saying it went away? I'm asking because both my ENT and neurologist have said that stress does not cause Dystonia although it may aggravate the symptoms as with any disease. So I am very interested in your experience. Dystonia is a movement disorder brought about by imbalances in certain neuro-transmitters. Although i think stress will not cause you to have dystonia, per se, it can definitely trigger its onset especially if you are genetically predisposed to it. Sudden mental, physical and emotional overload can cause a lot of hormonal and neurochemical imbalances. Think about it as something like having tremors after drinking several cups of coffee. Some people get tremors with just one cup, some after 5 or more...some has it worse when they are under pressure. Try to find your center, ruth. I agree with ladywind, dont keep it all in on your own. Im not saying whether it is permanent or temporary, but the longer you remain in that imbalanced state, the harder it will be for your body to recover. Take care of yourself. And yes, pray and trust. It has always helped me to know that i am not alone in my troubles, and to be able to let go of at least part of that burden. May God bless you and help you in your time of need. Thank you so much. You are right. And, I have already made an appointment with a counselor that I can really open up to and let it all out.  
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((((Ruth)))
(((Matt)))
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Well, it's been quite a week. My step-son is stable but still in an induced coma. It may be some weeks before they can bring him out of it. As if that wasn't enough I have developed sudden onset Dystonia and am praying I do not find myself completely disabled at some point as it is progressing rapidly for the worse. I had never even heard of Dystonia before Tuesday in the ER. Talk about having your life turned upside down. I am trying to stay positive for my family and my chidlren and that's actually why I came here to write abut how I'm doing because I can't really express my true fear anywhere else. i have to be strong for everyone but the truth is that I'm scared out of my mind. This dystonia may be temporary due to stress/ trauma. You need to be allow yourself to be human and for goodness sake dont hold your emotions in to be strong. Your body tells you when you are not ok. Scream, cry, do what you have to to unleash the hurt, frustration. I am speaking from experience. My first husband was in a car accident with head trauma, induced coma, on life support. Shall continue praying for you ..... You are speaking from experience about Dystonia? When did you have it? Are you saying it went away? I'm asking because both my ENT and neurologist have said that stress does not cause Dystonia although it may aggravate the symptoms as with any disease. So I am very interested in your experience. |
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A dill pickle. One good thing about this Dystonia is it's very hard to eat or drink so I'm losing weight.
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Topic:
Crystal's Oil Paintings
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Looks like a wonderful place to be. Beautiful painting.
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Well, it's been quite a week. My step-son is stable but still in an induced coma. It may be some weeks before they can bring him out of it.
As if that wasn't enough I have developed sudden onset Dystonia and am praying I do not find myself completely disabled at some point as it is progressing rapidly for the worse. I had never even heard of Dystonia before Tuesday in the ER. Talk about having your life turned upside down. I am trying to stay positive for my family and my chidlren and that's actually why I came here to write abut how I'm doing because I can't really express my true fear anywhere else. i have to be strong for everyone but the truth is that I'm scared out of my mind. |
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Update: Colton is in stable condition and responding well to treatment. He is not awake and has a very long way to go, but his doctors are optimistic. Thank you all for your prayers and well wishes.
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I feel so sorry for him and you and your family you must be totally stressed out..Obviously... any update Thank you.
The swelling in his brain is decreasing so we are optimistic. But, it's still to soon to know anything for sure. It's so hard waiting but that's what we have to do. He is very lucky though all things considered. He has chemical burns on his back from the gasoline and they said he was lucky he didn't catch on fire. There were two nurses at the scene of the accident who helped him right away. The paramedics got there really fast. They just threw him in the ambulance and got straight to the hospital. Plus, he's a fighter. He always has been. 
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Sooo sorry to hear that Ruth ... . They will likely keep him in an induced coma to allow swelling to subside and optimise cerebral perfusion . During that time neurological assessment is not possible till they lighten his sedation . They will look for him to follow simple commands... make purposeful rather than reflex movements with the absence of seizure activity or posturing . It's a difficult time for family when they really need answers . My thoughts are with you and your loved ones . If you need to talk message me
That is exactly what they are doing and they are already seeing a decrease in the swelling so we are very hopeful. Thank you so much for your good wishes and for sharing your knowledge on the subject.
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Thank you all so much. You have no idea how much your love and support means to me. Truly.
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I know I don't post much these days and many of you probably don't me, but I'm asking anyone and everyone who will to please offer a prayer or positive energy for my stepson. He was in a very bad motorcycle accident yesterday morning and is in the ICU with multiple injuries including a swelling of the brain. He could wake up with no brain damage or a lot of brain damage. There is no way to know right now. Please pray that he wakes up with no brain damage. Thank you.
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Topic:
odd "ghost" pics
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Yes please!
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Topic:
odd "ghost" pics
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The building you are looking at was not creepy. It just looks that way because it's night time. The surrounding desert we were in was beautiful and peaceful and you could easily have put out a sleeping bag and tent to sleep under the stars.
That being said, the building in the back was a whole different story. We walked through it and there was a very claustrophobic energy. My friend said she felt like her throat was closing up and I felt like the walls were closing in on me. I felt....trapped. The feeling subsided as soon as we exited back into the desert. We did not see or hear anything ghost like. According to the stories we have heard, it's an old insane asylum. I do not believe this based on the layout of the two buildings. It is possible it was a boarding house for a dozen or so moderately mentally ill but I'm just speculating. Local people say it's haunted and since its 10 minutes away we decided to check it out. Interesting experiment but I wouldn't go again. Mainly because I got to bed late and I don't like that. 
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Flowers. There are never enough flowers.
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derriere
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Spaghetti and meatballs.
Time to go to bed with my book. 
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I smell rain and I hear thunder. 
It's a bear in the woods! I wish. 
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I smell rain and I hear thunder.
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Topic:
SINGLE or TAKEN? - part 25
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Very taken.
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