so my one year old neice was put into the category of epileptic because they cannot figure out why she is having seizures. does anyone know anything that could help

what kind of seizures is she having?

my son has about 50+ a day but you cant see em and hes got the neurologist baffled..

she has had every friggen type. tonic clonic, drop, absence. shes had them all and all test are coming back normal. they are getting worse. early nov. she ended up in ICU on a ventilator

found a definition of it? not sure what your lookin for

Epilepsy is a common chronic neurological disorder that is characterized by recurrent unprovoked seizures.[1][2] These seizures are transient signs and/or symptoms due to abnormal, excessive or synchronous neuronal activity in the brain.[3] About 50 million people worldwide have epilepsy at any one time.[4] Epilepsy is usually controlled, but not cured, with medication, although surgery may be considered in difficult cases. Not all epilepsy syndromes are lifelong – some forms are confined to particular stages of childhood. Epilepsy should not be understood as a single disorder, but rather as a group of syndromes with vastly divergent symptoms but all involving episodic abnormal electrical activity in the brain.

they cannot find a medicine that controls hers

i dont know if this helps but have they done an mri? theres a nerve mass in the middle cerebrum that sometimes is unstable..or thats what our doctors telling us

Oh my gosh!!
All I have is prayers. May I?
Kat

yes you may and they have done numerous MRI's EEG's blood work cat scans x rays everything to no avail

My son has convulsion/seizure like episodes once every 6 mos to a year apart. The neurologist won't lable it seizures because she says they don't sound typical of seizures... They thought at first it was cough medicine because up until last week he only had them when he was sick with a cold and taking something for it. Last week he had one of the worst was catatonic like for 20 min and then had 2 more all 1/2 hour apart. He's already had one eeg it came out fine.. Monday he's going for an MRI and 2 more EEG's one while sleeping and one while awake...

I hope they find out and that your niece is ok...

they are admitting her into the hospital for 3 days in january for a video eeg. 24 hour eeg, video and audio. they are going to induce a seizure so they can see what her brain is doing during one

How old id your neice. The reason I ask is that certain actives can trigger seizures. Everything from lights to memories can cause the neuron receptors in the brain to over excite??

Considering I have had epilepsy (mine is controlled however) since I was 1 1/2 yrs old (I'm 34), as well as my son, who has both tonic-clonic (controlled) and absence (slowed down, but not stopped altogether) seizures, I have pretty good knowledge of it.

The tests often come out normal, from my own experience. Both my son and I have never had an EEG that didn't come out normal. An MRI might tell you something, but it might not, especially if it's something so small that it can't be located.

It sounds like from your situation, that your niece may have issues with multiple parts of her brain, which always makes it more complicated. The thing with epilepsy though, is that everyone's is different, and responds to different drugs. 2 people may both have tonic-clonic seizures, but one may respond to Dilantin and the other may not. It's often a trial and error to figure out which ones work for an individual. It took 3 different neurologists to finally figure out to use Keppra to slow down my son's absence seizures (like me, he uses phenobarbitol to control the grand-mal seizures).

What I suggest is either you or your niece's parents get all the information about epilepsy that you can and try to see if you can figure it out yourself. Sometimes, you may even know more than the neurologist, because there aren't many neurologists that are very knowledgeable on epilepsy. If worse comes to worse, she might have to go see an epileptologist, which is sort of a neurologist who specializes in dealing with epileptic patients. You can start getting information by going to www.epilepsyfoundation.org. If you need anything else, let me know and I'll be glad to relay what I know.