((((((((((((( Prayers )))))))))))))))

add mine

Suz

Much love and miss you honey!! You know you are in my thoughts and prayers every day! Let me know how everything turns out!!

Awwwwwwww ((((((((((HUGS & LOVE & PRAYERS)))))))))))
ON THE WAY

I JUST RECEIVED THIS FROM SUZ CONCERNING (((((((NOAH))))



wanted to send a quick note to you. Noah is home today, but he's quite grumpy and still has some medication to get out of his system. Last night was REAL rough.... they had to sedate him to keep him from pulling out his iv and prevent him from getting up. He had to lie still for 6 hours after surgery... well you know most children do not understand that. He was sedated and woke up around 9:30 pm last night and was in and out of it until 5;30 this morning. He's been hitting himself and tossing himself back towards our chest and really is having a hard time dealing with the pain he feels. He threw up last night around midnight and gave us a good scare, but he is doing much better today considering all he has been through. Please post the group and let them know that Noah is home recovering and hopefully by tomorrow he will be back to his old self again.

THANK YOU FOR ALL OF YOUR LOVE, PRAYERS AND SUPPORT!

I'm SO thrilled to be able to share the news that he did okay.

Hugs to all my friends and prayer warriors...

Well I must be going.... I have to help keep him calm today.

Mystique42



PRAYERS AND HUGS ARE STILL ON THERE WAY

My prayers for noah and family will continue!!!

Glad he is home.Prayer and thoughts being sent.

Hello my dear friends and prayer warriors!

I finally have a moment and Noah is contently asleep now. Today I noticed he could not walk or even put his weight on his feet. I had hoped that would change during the day but it did not. I will be praying tonight that he will be able to walk tomorrow. I know they told me that putting him under was risky because of him being a Downs baby, but there was no way my STRONG boy was going to leave an IV in HIS arm! Today was a very rough day because he was still banging his head... I could not lay him on the floor without a pillow under his head and I'm sure he is in pain but just doesn't quite know or understand how to express it. He was biting, scratching and truly having a difficult time today. At least he did talk some later in the day and he began eating and drinking. The doctor told us to just watch for a fever. I love you ALL for your thoughts, prayers and support during this difficult time. I am THRILLED my little boy is home. I've been SO worried about him as you all know. Noah has both of his holes closed in his heart and he was only in surgery for two hours. At five of three I said outloud "Three oclock would be a good time for this to be over"... and sure enough the beeper went off and the procedure was over. They broke rules yesterday for NOAH.... usually they only allow one parent into the recovery room and in with them at night.... but because they really needed to keep him calm they allowed us both to be there and it took both of us to try to keep him calm. He literally wore me out with all the tossing and turning he did with all the wires connected to him that monitored his heart and oxygen levels. So tonight I'm praying for Noah that he wakes up without the pain he has been feeling and being able to walk... even if it's just a few steps. Hugs to ALL Of you!

All our prayers go out to you and your family. Noah sounds like a strong little guy, so he's going to fight to get better. It will take time. Stay strong. God bless you and the family. Kisses to Noah.

Our prayers continue...

Glad he is home! Rest and be well Noah...

Noah is not having a good day today would you all keep him in your prayers for they are needed at this time. I just got this e-mail from his mom: They are in route back to the Hospital with Noah.

(((((((((((((((HUGS & PRAYERES))))))))))))


COMING YOUR WAY NOAH!! HANG IN THERE LITTLE ONE !!


Previously Mystique42 wrote:

Today Noah can not walk and we are taking him back to Hershey. Nobody seems to know why he can't stand up. He should be up and walking. The pediatrician here refused to see Noah today and said to take him back to Hershey, and Hershey suggested taking him here to see the pediatrician.



So just keep praying. Noah basically can't keep his balance when he goes to stand up, but he can sit.



Hugs,



Suz

prayers an light to little Noah...strength to his loved ones
jax

(((((((((NOAH))))))))))


Prayers are still on the way and will keep coming your way little one grab on and know we are here for you

I came on here and was surprised to see everyone is still reading this thread. We are back home from Hershey, and Noah saw three doctors, but they are not 100% sure what is going on with Noah right now. I was told by the last doctor that usually all the medications wears off after 24 hours, but she has seen some children that do need a little bit longer. I was told by one doctor Noah should be up and back to his old self. If Noah is not walking by this coming Monday he will have to see a neurologist. So lets KEEP praying that Noah heals and can dance and walk again without falling down. It's so hard to see him get up and then fall and lose his balance. I have to stay by his side every second of the day to protect him from getting hurt. (I have this minute only because he is taking a nap right now.) Noah did NOT like having to go to the hospital and he said..... "home... go home.... I want go home". Well I love you guys and thanks for all the support.

Great news.... finally tonight Noah began walking, not only walking but it wasn't long and Elmo came on and he was DANCING!
I wanted to share the wonderful news!

Yeah!!! Hugz suz and Noah....

big hugs to you and Noah..this is great news..

keep the strength
prayers to you and noah he is a brave soul

Noah continues to grow in leaps and bounds. He even has been saying four words to a sentence which is a BIG thing to us.
However his father lost his job on Monday... so I've been doing some more praying. I'm beginning to wonder if we just aren't meant to stay here. Here is to hoping for the financial resources to keep this boat afloat!